We've been walking through The Valley of Chronic Ear Infections for most of 2013. Frequent ear infections are a common event in the life of an extra chromosome, I knew this at the start of our journey, but we've been hit particularly hard in that department. Nine times since the start of this year, I've rushed my little boy to our pediatrician with a temperature over 103, limp and listless in my arms. (Twice we've been admitted to the hospital--for resulting pneumonia & dehydration.) Each time he bounces back to his happy little self within 24 hours of antibiotics and Tylenol, but after ear infection number four I started asking for ear tubes. Somehow securing this simple procedure has been an event in and of itself.
The first local Ear Nose & Throat (ENT) physician we were referred to listened as I shared our ear infection history and I fully expected he would jump up and call the operating room scheduling desk before I stopped to take a breath. Instead, he stared at me blankly and stated (I'm quoting!): "You really shouldn't waste your time & money on kids like this. He's got one good ear. Let him use it".
Can you flipping believe that??????????????????? I don't make a very good ticked-off mommy. We stormed out of that office so I wouldn't punch him in the face. (Yes, a formal letter has been written to the CEO of that hospital system.)
The second local ENT physician we visited was delightful; he spent time with us, flirted with Isaac, validated my concerns during three separate office visits...and then refused to offer any treatment options. "You know he has Down syndrome, he is just going to get sicker than other kids. I hope this winter is better." Wait...what? NO. We need a different plan than 'deal with it', even if you are nicer than the first fartknocker we saw. (Christian swear word...insert your own totally justified descriptive word of your choice...I've probably thought it already.)
During our ninth ear infection visit to the pediatrician I was nearly in tears. SURELY, there has got to be a better plan! We cannot walk through this valley for one more day. We simply can't. Thankfully, the clinic nurse has an adult son with Down syndrome and heard our plea, made some calls and got us in to a specialty clinic in Seattle. I was so very thankful! Miracles of miracles occurred with the calendar and the lovely nurse practitioner who saw us (way to go NPs!) gently asked 5minutes into our visit "Why doesn't he have tubes yet?!" I swear to you, I nearly kissed her! We were scheduled for the procedure within minutes.
So, today is our day to walk out on the other side of The Valley. Praise the Lord! Ear tubes aren't 100% and Isaac will always be prone to infections more frequently than other kids, but we are praying as we enter the winter season that the tubes will lessen the frequency & severity of any illnesses that may come our way. I am thankful for the miracle of modern medicine, a well placed clinic nurse and even more thankful for the power of The Great Physician in our lives. For whatever valley we ever walk through, we will not fear, for our God is with us, guiding, blessing, protecting & comforting. That is His promise to us. (Psalm 23)
Here is my silly boy prepping for surgery...
P.S...we are home already and resting well. Praise the Lord!
Can you flipping believe that??????????????????? I don't make a very good ticked-off mommy. We stormed out of that office so I wouldn't punch him in the face. (Yes, a formal letter has been written to the CEO of that hospital system.)
The second local ENT physician we visited was delightful; he spent time with us, flirted with Isaac, validated my concerns during three separate office visits...and then refused to offer any treatment options. "You know he has Down syndrome, he is just going to get sicker than other kids. I hope this winter is better." Wait...what? NO. We need a different plan than 'deal with it', even if you are nicer than the first fartknocker we saw. (Christian swear word...insert your own totally justified descriptive word of your choice...I've probably thought it already.)
During our ninth ear infection visit to the pediatrician I was nearly in tears. SURELY, there has got to be a better plan! We cannot walk through this valley for one more day. We simply can't. Thankfully, the clinic nurse has an adult son with Down syndrome and heard our plea, made some calls and got us in to a specialty clinic in Seattle. I was so very thankful! Miracles of miracles occurred with the calendar and the lovely nurse practitioner who saw us (way to go NPs!) gently asked 5minutes into our visit "Why doesn't he have tubes yet?!" I swear to you, I nearly kissed her! We were scheduled for the procedure within minutes.
So, today is our day to walk out on the other side of The Valley. Praise the Lord! Ear tubes aren't 100% and Isaac will always be prone to infections more frequently than other kids, but we are praying as we enter the winter season that the tubes will lessen the frequency & severity of any illnesses that may come our way. I am thankful for the miracle of modern medicine, a well placed clinic nurse and even more thankful for the power of The Great Physician in our lives. For whatever valley we ever walk through, we will not fear, for our God is with us, guiding, blessing, protecting & comforting. That is His promise to us. (Psalm 23)
Here is my silly boy prepping for surgery...
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| Peek-a-boo! |
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| Large & in charge! |
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| High-five operating nurse---you can do it! |















